A new study suggests the monoclonal antibody daratumumab has similar benefits when delivered via subcutaneous injection as it does when delivered intravenously to patients which myeloma persists or recurs after first-line treatments. Patients given subcutaneous daratumumab along with the immunomodulator pomalidomide and the anti-inflammatory steroid dexamethasone were 37% less likely to die or have their disease worsen compared to patients who received pomalidomide and dexamethasone alone in the phase III trial. Continue reading
Myeloma Patients Europe (MPE), in collaboration with the pharmaceutical company Amgen, launched a survey in 2019 for European myeloma patients to understand their treatment information needs. Continue reading
Location: European Union or United Kingdom / home based (approx. 15 travel days per year)
Contract: Full-time (part time also possible) / permanent
Salary: 40.000 EUR/year GROSS
The world’s largest haematology conference will be held virtually this year from the 5th to 8th of December. Despite the difficulties and limitations posed by the coronavirus pandemic, this year’s American Society of Haematology Annual Meeting will feature , more than 200 abstracts in myeloma and AL amyloidosis.
Myeloma Patients Europe (MPE), in collaboration with the European Cancer Organisation’s Patient Advisory Committee, held a webinar on Evidence-Based Patient Advocacy on 17 November. Continue reading
Myeloma Patients Europe (MPE), in collaboration with the European Cancer Organisation’s Patient Advisory Committee, will hold a webinar on Evidence-Based Patient Advocacy on Tuesday, 17 November from 14:00 – 17:15 CET.
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The 6th World Congress on Controversies in Multiple Myeloma (COMy) will be held virtually on 3 – 4 October 2020. Leading doctors in myeloma and AL amyloidosis will discuss the latest advances in the field and improvements in patient care. Continue reading
As part of Myeloma Patients Europe’s (MPE) ongoing work to ensure that the patient voice is fully represented, and to strengthen organizations’ and individuals’ ability to advocate effectively, in 2017 MPE created the Advocate Development Program (ADP). The ADP is a 12-month training programme designed to develop participants’ advocacy knowledge and skills to better serve patients locally, nationally, and across Europe. Through the course, participants improve their understanding of clinical research and development, mechanisms of accessing diagnostics and drugs, interaction with stakeholders including clinicians and industry, and the basics of evidence-based advocacy. Continue reading
This year, the European Cancer Summit 2020 will take place on November 18 – 19 as a virtual congress. To help support our members in their ongoing education and advocacy, MPE will be sponsoring one representative from each member organisation to attend European Cancer Summit 2020 as a patient advocate. Continue reading
The pharmaceutical company Oncopeptides has announced that the first patient has been enrolled in the OP-201 study. This is an open-label, phase 1/2 study to evaluate melflufen and dexamethasone in AL amyloidosis patients, following at least one prior line of therapy. This is the first study to explore the effect of melflufen outside of myeloma. Continue reading